posted May 31, 2010 5:10 PM by Steve Frechette
[
updated May 31, 2010 5:11 PM
]
Hi Everyone,
We wanted to let you know about a gluten-free pizza
tasting event at the Natural Food Exchange which is hosted by Ians. There will
also be a soy cheese option as well. This event will take place on Tuesday June
8th from 7-8 pm.
Hope you enjoyed the long weekend!
Lisa & Steve |
posted Jan 6, 2010 1:40 PM by Steve Frechette
The schedule for TRAIN meetings for the remainder of the 2009-2010 school year has been posted. Please see the Meetings page for times and locations. We look forward to seeing you this year! |
posted Jan 5, 2010 7:34 AM by Steve Frechette
[
updated Jan 5, 2010 12:19 PM
]
Before we launch into TRAIN meetings and activity for the new year, we wanted to
take a moment to recognize Pat Schettini, former Superintendent of Reading
Public Schools, who passed away during the Christmas break. Pat's influence and
impact on the school community was tremendous and his importance to TRAIN
families and other families who have children with life-threatening food
allergies cannot be overstated.
Many of you may be new to the Reading
Public Schools (RPS) or don't remember what things were like before Pat became
Superintendent in 2003. Before Pat, the RPS system was not food
allergy-friendly. While many well-intentioned nurses and teachers did their best
to keep kids safe, the fact is that the RPS was a very challenging environment
with many obstacles to safety. The RPS lacked district guidelines or policies.
It lacked awareness and educational programs for staff and students. The staff
was either not trained or was under-trained on EpiPen administration. Cafeteria
policies and safety procedures were weak. There was no understanding of the
allergens in the foods that were sold through the cafeteria. Fundamentally, the
RPS lacked the culture necessary to provide a safe and welcoming environment for
families whose children had life-threatening food allergies. Other parents tried to instigate change but the
fundamental problem was that the RPS simply did not have the critical top-down
leadership necessary to implement change.
When TRAIN was first formed as a support group, the dominant issue of
concern for the original members was food allergy management (or lack thereof)
in the schools. At the same time that TRAIN was formed, Pat came on the scene as
new Superintendent. We reached out to Pat in hopes of working with him to create
the change that the RPS needed. Our hopes were high but we did not know if Pat
would be a champion for our children's safety. Would he be receptive to our
concerns? Could he understand the subtle demands of food allergy management?
Could he change the culture from being allergy-ignorant to allergy-friendly? Was
he willing and capable of making change? Would he even be willing to meet with
us?
Well, Pat responded to our meeting request very quickly and did not
disappoint. Not only was Pat receptive but he demonstrated a great deal of
personal awareness and experience with food allergies. He shared stories of
family members who were managing food allergies. He described his own experience
as an EMT who administered EpiPen to patients suffering life-threatening
allergic reactions to bee stings. He demonstrated a great deal of empathy as
parents described their personal situations.
Not only did Pat acknowledge the
weaknesses in the RPS but he also proposed a Food Allergy Task Force as a way to
craft district-wide Guidelines. After Patti Casciani created the initial draft,
the task force reviewed them and contemplated each scenario and guideline.
Throughout the process, Pat was an eager learner, he provided practical
suggestions, and he remained absolutely committed to the safety of our
"youngsters" as he so affectionately called them. This initial process lasted
for many months over multiple meetings. Pat was totally committed to this effort
and believed strongly in what we were doing.
Eventually the first
revision of the guidelines was completed and put into practice. Initial
implementation in the elementary schools was rough but Pat did not walk away.
This is because Pat was not a talker; he was a doer. Pat wasn't a tinkerer with
many unfinished projects in his workroom; he was a closer - he finished things
he started. Pat was highly responsive to many issues and he personally
intervened with various school personnel to ensure that situations were
corrected and systemic issues were avoided. Pat then initiated an outreach
program to meet with parents, town hall style, at each elementary school. He
wanted to make sure he understood what was happening at each school while also
taking the time to brainstorm solutions with parents. Pat never promised
perfection but he always promised to try.
Pat was extremely dedicated to
success. He spoke with experts such as Dr. Michael Young of Children's Hospital
in Boston. He spoke with politicians who were working on MA legislation to
improve food allergy safety in the schools. He discussed this topic with
administrators in other school districts. He empowered and encouraged all of his
staff to become more aware of food allergy health issues and management best
practices. He simply never stopped.
Quite often Pat demonstrated
significant stength in leadership by standing up to complaints, belligerent
attacks, and lawsuit threats from individuals who were unhappy that their child
was unable to eat PB&J in class. He stood up to them and we didn't have to.
I am personally aware of several of these situations and his job must have been
very difficult during these times but he never complained. In fact it was easy
for him because, as he often said, "it was the right thing to do".
He created sea waves of change in a
very short time. He did this not only for food allergy management but for dozens
of other issues as well. In retrospect it is amazing how much energy and effort
he spent on food allergies while he was also dealing with the legacy of a broken
system that he inherited and with new challenges that he encountered. Major
school building projects, redistricting, significant legal risks, maligned
budgets, antiquated organizational structures and processes, NCLB, MCAS. These
are just some of the many large issues he dealt with and yet he still made food
allergies a significant priority.
We feel extremely fortunate that our lives crossed
with Pat when they did. We have experienced the change that Pat delivered on
behalf of us and our children. Our schools are much safer and our school culture
is much more allergy-aware and allergy-friendly than ever before. As we remember
Pat, we will be forever grateful for his empathy and strength of
leadership.
And most
importantly, we will strive to honor his memory by taking the right actions in
our lives, even if they are difficult, for one simple reason ... "because it is
the right thing to do."
Steve and Lisa
Frechette
|
posted Nov 9, 2008 10:33 AM by leaveanote@verizon.net
[
updated Nov 9, 2008 4:46 PM
]
Cravinings Place Mixes available and on sale via Amazon - You can purchase the Brownie Mix by the case (6) with free shipping for only $5.05 per package - we just bought a case of 6.
Looks like they carry the full line and all are on sale with free shipping from $26.77 a case to $30.31 a case. Sure beats the $8.29 per bag at the Natural Food Exchange Store. http://www.amazon.com
Today in the Sunday Paper coupons A Season Full of Seasons we saw an awesome advertisement by Rumford for Corn Starch they have an emblem that says Processed in a Peanut Free Facility. http://www.rumfordworld.com
Having trouble reading some of the tiny print on ingredients - labels? This has been a challenge for us so we just bought a magnifier from Restoration Hardward North Shore Mall - they have pocket size and key chain size they light up & magnify work great. The pocket size cost $6.00 and the key chain size cost $8.00. they are available on line also at http://www.restorationhardware.com. |
posted Aug 25, 2008 7:18 PM by Steve Frechette
[
updated Oct 13, 2009 7:38 PM
]
The TRAIN Website has been re-designed to encourage member participation and communication greater than before. The website offers the following services to the food allergy community in Reading,
Massachusetts:
- up to the minute food allergy news
- online discussions
- member-maintained lists of restaurants and foods and other topics
- email notifications when pages are updated
Most features are self-explanatory, however, for general rules and tips for using this site, please visit the Site Tips page.
While
anyone can read the TRAIN website (like before), only TRAIN members can
contribute to topics, comments, or discussions. TRAIN membership and
access to all of these services is free. To register just send your
email address to contact-us@readingallergy.org (which goes to Steve and Lisa Frechette). We hope you enjoy this site and look forward to meeting you at one of our upcoming meetings!
Steve and Lisa Frechette |
posted Aug 20, 2008 4:27 AM by Steve Frechette
[
updated Aug 20, 2008 4:33 AM
]
| Please visit the meetings page for a list of all scheduled TRAIN meetings. |
|